tag:blogger.com,1999:blog-9048720839013087348.post3741325221776199824..comments2024-02-27T13:36:38.832-08:00Comments on The Other Side: The beginning of the end?Lisahttp://www.blogger.com/profile/17766422197931332768noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-9048720839013087348.post-1572731481487706292010-05-15T19:20:49.542-07:002010-05-15T19:20:49.542-07:00I am just seeing your blog now. I highly highly hi...I am just seeing your blog now. I highly highly highly recommend Cleveland Clinic, and I know they seem to pride themselves on taking cases that other centers do not, including multiple organ transplants. For me, and in general, they do not require you to live in Cleveland while on the list, though they do transport you there if you are critically ill. I am not sure if this would be true for Seattle to Cleveland transport, but I know it was said that they "go all over the country,"- please feel free to email me at cysticgal@gmail.com and we can email or talk on the phone.<br /><br />Do not give up. The beginning of a hard patch always seems like the beginning of the end.<br /><br />The End has begun so many times for us CFers that The End can suck it! :) <br /><br />With love, and a dark wit, <br />BethBeth Petershttps://www.blogger.com/profile/14120777723370461529noreply@blogger.comtag:blogger.com,1999:blog-9048720839013087348.post-29275263477470375512010-05-12T20:36:04.539-07:002010-05-12T20:36:04.539-07:00Hugs to you Lisa! I know you guys will make the ri...Hugs to you Lisa! I know you guys will make the right decision!NoExcuseshttps://www.blogger.com/profile/01015122167362668804noreply@blogger.comtag:blogger.com,1999:blog-9048720839013087348.post-61273118771453916072010-05-12T14:14:15.785-07:002010-05-12T14:14:15.785-07:00HUGS Lisa!!!!!!
I hope that you are able to chat ...HUGS Lisa!!!!!!<br /><br />I hope that you are able to chat with the team and figure this out. Patti will be the first to say Cleavland clinic is great for the liver and lung transplants. Maybe you could see about being listed there. I know Patti still lived in NY and Beth is also listed there and still lives here in Boston. It's worth a shot. :)Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-9048720839013087348.post-46549087892856017682010-05-12T11:12:00.073-07:002010-05-12T11:12:00.073-07:00Yikes Lisa! I think it's a really good thing t...Yikes Lisa! I think it's a really good thing that Gess is ready to start talking about transplant. I remember he hasn't been, I guess, up until now. <br /><br />Talking about it, thinking about it and going over the facts with a transplant coordinator will all help in grasping it more. <br /><br />Everyone can be so different when it comes to their numbers and their presentation of cf progression, that I think you need to focus on your gut feelings and act on those instead of waiting for x, y, z to happen first (ie: getting on o2, etc.) I should talk, b/c I've been kind of waiting to need O2 before taking the next step in my evaluation, but one coordinator told me not to do that. So I agree, there is SO much to contemplate. <br /><br />I'm going to PM you.<br /><br />XO to you and Gess!CowTownhttps://www.blogger.com/profile/15756130935907522719noreply@blogger.comtag:blogger.com,1999:blog-9048720839013087348.post-91255034526129127772010-05-12T09:50:16.013-07:002010-05-12T09:50:16.013-07:00Oh sweetie, my heart hurts for you so much right n...Oh sweetie, my heart hurts for you so much right now. "In sickness and Health" takes on a whole different flavor when you have to deal with the decisions that you guys are now having to make. Know that you are both loved so much and I am here if you need anything. Big hugs to you both.Sandyhttps://www.blogger.com/profile/02336538897240381929noreply@blogger.comtag:blogger.com,1999:blog-9048720839013087348.post-45303801931449567692010-05-12T08:48:29.333-07:002010-05-12T08:48:29.333-07:00so much to think about. Hard too, having come off...so much to think about. Hard too, having come off a year like the CF commuity has had, not to think about all this stuff. I hope you guys can have some good conversations between yourselves and with your docs and have some choices in place so if and when the time comes where a decision HAS to be made, you'll be ready. (((HUG)))Shannonhttps://www.blogger.com/profile/13206878577572069862noreply@blogger.com