An update

I know it has been a while...basically I am getting tired of complaining about CF and the toll it is taking on us this year. But, it keeps going and going and going.

First, I got what the doctors presume is the swine flu. I was so upset when I heard. I cried and cried and felt so bad, not wanting to get Gess sick. I have done everything that they tell you to do to keep from getting sick, but to no avail. We, of course, called the clinic and they put Gess on Tamiflu proactively. We called my MD's office and their response was that Gess should be on tamiflu, but that I should just wait it out. I initially accepted that answer, but at the urging of some facebook friends, decided to talk to my ND. I just told him my symptoms and he prescribed tamiflu right away and also mailed me some Chinese herbal tea. I love my ND! He is so reasonable...he uses traditional (western) and alternative medicines and has made such a positive difference in my health.

Anyway...Gess took care of me for a couple of days...bringing me food and checking on me. We kept a reasonable distance and sanitized everything I touch...but a couple of days later, Gess started feeling fluish too. He was on tamiflu, but yesterday woke up with a swollen face. We called the pulmonary fellow on call (not sure why things always happen on the weekend!) and he told us to take Gess into the ER. The conclusion is that he was having a (very) delayed allergic reaction to the tamiflu. They took a swab to test for the flu, but I am not sure if it will have been too late or not, so I doubt that we will ever know if we "officially" had H1N1. The ER doctor wanted to admit Gess, but the pulmonary fellow said no because he might be exposed to the flu if he didn't already have it. I have a feeling that the hospital is inevitable, so I really wish that they would have just admitted him, but what do I know? They did put him on another anti-viral, again, presuming that he does have the swine flu.

Today Gess contacted the clinic and they put him on IV antibiotics. He is pissed about it. He is also having lung pain, so is on pain meds again.

He is so frustrated with his health right now and I can see it in his mood. It is hard to watch and I don't know what to do. And I miss my husband and want him to come back. This "new" guy is hard and negative. CF sucks!

As for me, I am starting to feel better. No fevers for a few days and the biggest issue I have is a cough. Gess keeps commenting on how bad it sounds ("You sound worse than me!"), but it is getting better. I have more energy today, so I am happy about that. I am hoping for a break from being sick and hoping that Gess starts to feel better soon.