Monday, January 4, 2010

Oue CF Year in Review 2009

Okay, there is no other way to put it...2009 sucked in CF land!! I just looked over Gess's (extensive) list of EOBs from our insurance company to see the damage and it looks like he was either in the hospital or on IV abx more than he wasn't. Hospitalizations were in the double digits. He had lots of hemoptysis and two embolizations (one they were able to embolize, the other was an attempt but they couldn't find anything to nuke). He has his first (and hopefully last) seizure. Add abx-related hearing loss, and you have our CF year in a nutshell.

Interestingly, his PFTs have remained pretty constant during this I guess that is the upside. The sheer number of hospitalizations and exacerbations has me very concerned though. I am really not sure what to think about all of this, and quite frankly it freaks me out.

In addition to the physical difficulties, this has been a very trying year emotionally/mentally. Gess is trying to process through a lot of stuff, and I see that it is really wearing on him. I won't get into details since it is so personal to him, but it has been rough on both of us.

So yeah...add to that me losing my job, my dad getting dx with cancer, too many friends with CF dying...and 2009 was a really difficult year! And somehow, "difficult" does even seem remotely adequate.

I find that I am exhausted, physically, emotionally, and mentally. Gess is sick right now and on abx, so the trend is continuing. There are times when he seems ready to give up and it is hard for me to know what to do in those instances. Right now I just hug him and hold him and let him talk if he wants. still seems like it is not enough. I don't know what else to do.

I am also finding that I am really angry (and when I saw "really angry" I mean wanting-to-punch-someone-anyone-rage). I hate feeling this way, but it doesn't seem to be going way. I had a huge breakdown the other night (think uncontrollable sobbing followed by yelling and wanting to punch something) and that seemed to relief the anger for a bit, but I find it coming back. The only thing that I can think of is that I feel like I have lost myself somewhere in all of this. I am sure that my job situation is a big part of this...but that is a whole other ball of wax for another long blog.

So, to end...2009 was not good...and I demand that 2010 be better :)


NoExcuses said...

I am so sorry to hear about how awful 2009 has been to you and Gess :( I can't imagine having to go through what you do....

I agree 100% that 2010 MUST be better, for so many reasons. I stand right beside you demanding it be so.


Lovin Lane said...

Wow that does sound like a sucky year in CF land... My heart and prayers go out to you... And may your 2010 be full of blessings... When you are all out of fight just look up and he will carry you..... Fight on my friend....

CowTown said...

That's WAY too much ridiculous crap going on. I really hope this year is better for you and your family too!!!