So...last night we went out to dinner at our new favorite hamburger spot (Hamburger Harry's if you are in Seattle--yummy!). Gess wanted to get out of the house, but wasn't up for much, so this was his choice of adventure. When we got home he didn't feel well so sort of half laid down on the couch and what do you know, he started coughing up blood. Ugh. It was probably about a 1/4 cup, which is the presumptive "you need to go to the hospital" amount. But he refused, arguing that "they" (meaning the doctors) couldn't do anything. This is a valid concern considering. I still suggested that he go, but he decided not to and went to bed. About 45 minutes later I heard him calling me and came downstairs to find him coughing up blood again. This time about 3/4 of a cup. I told him that we were going to the hospital. While he argued with me for a bit, he eventually agreed. The bleeding had stopped by then, so we didn't rush. He asked me if I wanted his dad to come out and I hesitated a bit before saying my normal "no." So he got on the phone and called him (even though it was after midnight Florida time). His dad said that he will be here in the next couple of days. It was be nice to have him here, but at the same time I feel badly since there is probably not a lot that he can actually "do." CF seems to involve lots and lots of waiting.
Anyway, so we took Beauty to our friends' house for a sleepover and then headed to the UW. When we got there the ER waiting room was empty, which I don' t think that I have ever seen. By now, the doctors and nurses have seen us so many times that we don't have to go through the normal "so what brings you in tonight" sort of stuff and they all seemed rather sympathetic.
The on-call pulmonologist came down and she is a doctor that occasionally shows up at the CF clinic (according to Gess at least, I have never seen her there) and is somewhat familiar with Gess, having met him on the floor before. We decided that it was best not to do anything last night since IR was not in the hospital and the bleeding had been stopped for a couple of hours since that time. So, they admitted him to the ICU and I went home to get a little sleep.
No calls in the middle of the night, which is a good thing. Today will be an interesting day to see what happens.
This is just SO frustrating. Ughhhh...