The nurse coordinator from Denver also got back to me and told me that Dr. Nick wanted to talk to me directly. I talked to him yesterday about the situation. He said that they don't do a lot of embolizations at Denver and that there "go to" IR doctor left, so now if they need a procedure, they just use whomever is on call. He said that embolizations are really only good for life-saving situations. It was nice to talk to him and get his perspective on things. We may still go to Denver for a consultation about general CF stuff, but it doesn't look like anything specific will happen with the bleeding issue.
This whole bleeding thing is so frustrating and we really do seem to be running out of options.
On top of this, Gess started to feel like he had an exacerbation coming on. So...back on IVs. He is doing tobra once a day and ceftaze three times a day. He did go back to work too, which is good in a way. I think that being home is really mentally difficult on him. So...I think that finding the balance between work and rest is going to be key.
With all of this, I am just extremely stressed. I ended up taking an unplanned nap for a few hours yesterday and then slept until 10 am this morning. I think that my body is just exhausted. I struggle with what to do with my workouts since I know that exercise is good, but too much can be stressful on the body too. I have yet to start looking for a job, so that freaks me out a bit too. I am trying not to get too worked up, but if you know me you realize that is extremely difficult for me. So, right now it is one day at a time. I am sitting in a Starbucks catching up on blogs and email while waiting for my car to be serviced. I have a massage scheduled for tomorrow. I am making lists. I am taking deep breaths.